ILCM Incubator Webinars

Access to Care: challenges and opportunities

Aim:
to exchange ideas, experiences and learnings and inspire ways of thinking about the most effective ways to increase access to care for liver cancer patients.

Background:
There are many hurdles/barriers to care for liver cancer patients. These include:

• Awareness among HCPs and patients at ris
• Availability and affordability of treatments
• Stigma and discrimination

This online roundtable debate will explore the challenges above and hopefully generate new ideas of how they could be overcome in different country settings. We hope that the discussion motivates our members and partners, as well as raise awareness of our global initiative, prompting more advocates to join our fight.

Finally, this online encounter will provide insights which we hope to capture via the development of a highlights document.

Participants:

• Dee Lee, Inno Asia
• Lorena Stoopen, Fundhepa, Mexico
• Shaibu Issa, Tanzania

Moderator:

• Chari Cohen, HepB Foundation, USA

Advancing awareness and early screening in liver cancer

Aim:
to exchange ideas, experiences and learnings and inspire ways of thinking about the most effective ways to increase awareness of liver cancer, leading to early testing and diagnosis and consecutively better outcomes for patients.

Background:

There are many hurdles/barriers to raising awareness about liver cancer. These include:

• competition with other cancers (e.g., breast cancer)
• no understanding/ lack of awareness of the underlying disease (e.g., liver diseases, PSC, etc.)
• lack of data (e.g., prevalence, incidence, liver cancer pathways and management)
• lack of a strong community of liver cancer patients as many are too ill to advocate (most diagnosis occur at later stages)

This online roundtable debate will generate new ideas of how to overcome these challenges by exploring strategies being used by other health movements (HIV, hepatitis, lung cancer), as well as by giving concrete examples of liver cancer best practices (Taiwan, Europe). We hope that the discussion motivates our members and partners, as well as raise awareness of our global initiative, prompting more advocates to join our fight.

Finally, this online encounter will provide insights which we hope to capture via the development of a document/ position paper.

Participants:

• Tamas Bereczky, renowned HIV advocate
• Wendy Wang, Deputy Director at Liver Disease Prevention and Treatment Research Foundation, Taiwan
• Zorana Maravic, Director at DiCE, Europe
• David LeDuc, Director Oncology Patient Affairs at Astra Zeneca (Ex- Chief Strategy Officer for the GO2 Foundation, and Executive Director of the Addario Lung Cancer Foundation pre-merger)
• Raquel Peck, Director of Clarion I, and member of ILCM Operating Committee (Ex- CEO of World Hepatitis Alliance)

Moderator:

• Lauren Pretorius, CEO at Campaigning for Cancer, South Africa

CCA in the spotlight!

Aim:
cholangiocarcinoma is perceived to be in the shadow of HCC. This needs to be changed.

This meeting will provide:

• Data on CCA (prevalence/incidence/mortality – risk groups)
• Introducing material for promoting CCA
• Introduction of the work of AMMF and Cholangiocarcinoma Foundation

Participants:

• Helen Morement, Founder and CEO of AMMF
• Stacie C. Lindsey, Founder and CEO of Cholangiocarcinoma Foundation
• Yasmine Hassan (AstraZeneca)

Moderator:

• Achim Kautz, member of the operating committee of ILCM

How to boost your advocacy skills: free capacity building tool by Campaigning for Cancer (South Africa)

Aim:
To introduce the Patient Advocacy Incubator by C4C. This meeting will provide:

• How advocacy can be improved by using the tool
• How to share advocacy resources within the community

Participants:

• Adia Kabengele, Programme Coordinator (Campaign for Cancer)
• N.N. - Testimonial about using the PAI

Moderator:

• Achim Kautz, member of the operating committee of ILCM